Hi Everyone!
So for all of you that know me, you know that I run my business on my sleeve. What do I mean by that? I'm a pretty emotional guy that likes to have fun and help people. If I accomplish both those things, then I feel that life is pretty good. It's basically my definition of success!
Every year we have had the pleasure of running our annual charity golf tournament. The response we get is always exceptional and the support of our sponsors is excellent. The past three years we have raised approximately $30,000 for MS.
This year we are supporting a charity that is very close to my heart. My two year old granddaughter has been diagnosed with a very rare disease called Sturge-Weber. The most notable sign of Sturge-Weber is a Port Wine stain on the child's head and face. In very rare cases, 1 out of 20,000, this stain results in Sturge-Weber.
Sturge-Weber can be devastating. In most cases it causes learning disabilities and a lifetime of seizures. In some cases it can cause mental retardation, paralysis and even death. The hardest part for the family is that there is no way to know what is going to happen in the future. We had thought after we got through Lola's first birthday that we had a good chance of dodging the bullet. Unfortunately a few days after her first birthday she had her first seizure. It was extremely tough to see. This past Christmas she had her second seizure while out with her mom and dad looking at Christmas lights. She is currently on anti-seizure medication, twice a day, and will be for life. Luckily neither seizure brought on any permanent damage. We are hoping, because her birthday is today, St. Patricks Day, she has a little luck of the Irish!
This year our tournament is on April 26th at Savannahs Golf Club in North Merritt Island. Our goal is to sell out at 144 players. Our average has been around 120 players so this year I'm looking to raise a little more cash. For more information, go to: http://melbournehomesearch.com/index.cfm/Charity_Golf_Tournament
All the proceeds will go for research on Sturge-Weber. The top researcher in the country, Dr. Comi, has been a great resource and we want to do all we can to help her efforts. She is the specialist we use for Lola and she is always there when we need her. As you can see, we love her!
Thank you as always for reading my blog. I really appreciate all the support our customers and friends have given both professionally and personally. You guys are great!
Have a great week!
Mitch
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